Bee for Battens : Battens Disease

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Bee for Battens is the Saoirse Foundation’s original initiative. It provides information and support to children and families affected by Battens Disease. We fund and aid the research of Battens Disease through fundraising and campaigns. We are working to advance the education of the medical profession about Battens Disease and to promote global research into the management of this fatal neurological condition. Bee for Battens aims to raise awareness and fight Battens Disease worldwide