Mission Statement
To Make Positive Life Impacts for Seriously Sick Children & Their Families, and support those affected by Batten Disease & other Rare & Genetic Disorders, and those seriously ill children who require specialised transportation services via BUMBLEance.

Saoirse 10


We deliver smiles to sick children.

At the Saoirse Foundation, we help children suffering from rare genetic and debilitating diseases.  We know about the struggles involved in caring for a sick child and we want to do everything we can to ease that struggle.  We provide support and information to all of our families through our three initiatives.

BUMBLEance transports sick kids in a comfortable and fun environment.  This removes the stress and hassle of the journey.  The family can relax and focus on their child.

Liam’s Lodge will be a respite and holistic centre for our little patients and their families.  It will offer a welcome break for the families.  It gives them a chance to relax and care for their loved one.

Bee for Battens focuses on raising awareness.  We fund research into Batten Disease, which is very important to our families.  We also offer as much support and aid as they need.  This is a difficult time for them and we are here to help.

Family is very important to us.  Family is why we do what we do.  We want to create a better Ireland, and we will do this by allowing our families to keep smiling.