New research on Batten Disease CLN3 has been published as an Open Access article in Acta Neuropathologica Communications. New research on Batten Disease CLN3 has been published as an Open Access article in Acta Neuropathologica Communications. “Glial cell are functionally impaired in juvenile neuronal ceroid liipofuscinosis and detrimental to neurons” Download Here The research was led […]
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Planning Permission Granted for Liam’s Lodge
This week, An Bord Pleanla upheld the Planning permission granted by Kerry County Council to allow the construction of Liam’s Lodge. Liam’s Lodge will be a new national respite centre for children with complex needs, genetic, rare & life limiting disorders in Curragraigue, Blennerville, Co Kerry. Speaking today Tony Heffernan the CEO of the Saoirse […]
BUMBLEance takes flight for 12-year-old cancer patient
RTE Lifestyle Report – Updated / Wednesday, 28 Jun 2017 13:11 BUMBLEance was launched in 2013 and has become Ireland’s National and the World’s first interactive ambulance service designed specifically for children. We spoke to founder Tony Heffernan to find out more about this amazing service and the charity’s first BUMBLEair flight this weekend for 12-year-old […]
Christmas Holiday Arrangements
We are closed for the holidays until Tuesday 3rd January. Should you need to contact us urgently over the holidays please email info@saoirsefoundation.com or phone/text 083 004 4444 and we will respond to you request as soon as possible. Happy Christmas #LoveBUMBLEanceKids
Emergency Services Day 2016
BUMBLEance will be taking part in the Frontline Emergency and Security Services Eire Forum (FESSEF) parade in Dublin on Saturday, 17 September, 2016. The parade will take place through Dublin, starting at the Garden of Remembrance and finishing within the grounds of Trinity College. Members and vehicles of the Emergency and Security services […]
The Saoirse Foundation – 6th Birthday Today
The Saoirse Foundation – 6th Birthday Today 31 MARCH 2016 IT’s TIME TO CELEBRATE!! The Saoirse Foundation is SIX YEARS OLD today. We cannot believe how time has flown by 6 years of supporting critically ill children nationwide 6 years of fighting against Battens Disease 6 Years of supporting ground breaking research into […]
Bees! A Musical, competition winners
Thanks to our friends at The Ark, we received two family tickets to give away for BEES! A Musical. These tickets were given away as part of a competition on our BUMBLEance Facebook page. BEES! A Musical is a show for Ages 6+ filled with buzzing and songs, dancing and flying. Oh and you’ll learn […]
Adam On-board BUMBLEance on his 1st Birthday
Adam’s 1st Birthday on BUMBLEance October 20th was Adam’s first birthday. It was unfortunate that he had to make a journey to Temple Street Children’s Hospital for an appointment, but at least he made it in style on board the BUMBLEance The family and the BUMBLEance crew made a big fuss of Adam but they […]
Web Information for Families of Children with Rare Diseases – Parent to Parent Support
As a follow on from the 2014 study Web Information for Families of Children with Rare Diseases The Saoirse Foundation is pleased to announce an addition to the proposed website of parents of children with rare conditions. The addition is the development of the website’s parent to parent support, a recommendation from parents who took […]
Rare Disease Day February 28th 2015
8th Annual Rare Disease Day The Saoirse Foundation proudly supports Rare Disease Day. Rare Disease Day was established to raise awareness with the public about rare diseases. The 8th annual World Rare Disease Day will be held on Saturday, February 28, 2015. Rare Disease Day focuses on the day to day lives of patients living […]