Welcome to The Saoirse Foundation

At the Saoirse Foundation we are working towards creating a better world for critically ill children all over Ireland. We have three main projects where we work on making positive life impacts for sick children.

Bee For Battens provides a Support Programme for families and communities affected by Batten Disease. This includes family information packs, health care information and resources, ongoing family contact and support, international research, liaison with international counterparts and bereavement support. This is a rare genetic brain disease that is always fatal. BUMBLEance is the world’s first and most modern interactive children’s ambulance service that transports critically ill children between home and national treatment centres, hospices and respite centres.

Liams Lodge is Ireland’s 1st National Respite Centre for Children with rare and genetic disorders and their families. Liams Lodge will also contain on-site training and research facilities for care providers and medical professionals.